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Alport Syndrome Foundation is a non-profit organization founded in 2007 by a group of families affected by this rare, genetic kidney disease and advised by a Medical Advisory Committee of renowned Nephrologists. ASF is the leading independent non-profit organization in the United States serving and giving a voice to the Alport Syndrome community. Our MISSION is to improve the lives of those affected by Alport syndrome through education, empowerment, advocacy, and research. Our VISION is to conquer Alport syndrome.
Alport syndrome causes decline in kidney function, and can cause hearing loss, and vision problems. The majority of patients experience renal failure requiring dialysis and ultimately transplant if available, often during teen or young adult years.
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