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The mission of the Malan Syndrome Foundation is to improve the lives of individuals and families affected by Malan syndrome in the global community through support, outreach and research. Provide a broad network of support to families affected by Malan syndrome and help advance access to a diagnosis Promote knowledge development, awareness and sharing of information Explore research pathways to treatments and cures, as well as enhance understanding of Malan syndrome and related disorders
BUILDING ON THE BOLD LEGACY OF HENRI TERMEER, WHO PIONEERED GROUNDBREAKING TREATMENTS FOR RARE DISEASES, THE TERMEER FOUNDATION CONNECTS LIFE SCIENCE INNOVATORS AND CATALYZES THE CREATION OF NEW MEDICINES. THE FOUNDATION'S NETWORK OF EMERGING AND ESTABLISHED HEALTHCARE INNOVATORS CULTIVATES TOMORROW'S LEADERS AND LEVERAGES THEIR COLLECTIVE EXPERTISE TO SOLVE COMPLEX PROBLEMS IN DRUG DEVELOPMENT AND ACCESSIBILITY. THE FOUNDATION ALSO INTEGRATES ITS NETWORK WITH ACADEMIC INSTITUTIONS, NONPROFITS, REGULATORY AGENCIES AND OTHER ORGANIZATIONS ACROSS THE GLOBAL HEALTHCARE ECOSYSTEM TO PROVIDE EXPERT COUNSEL, STIMULATE INNOVATION, ELIMINATE BARRIERS TO PROGRESS, AND ULTIMATELY CONNECT THE WORLD OF HEALTHCARE UNTIL EVERY PATIENT HAS A CURE. TOGETHER, EVERYTHING IS POSSIBLE.
To help find a cure for Ewing Sarcoma (ES), a pediatric cancer, by fundraising to: raise public awareness by distributing facts; make scientific research grants for ES research; and planning activities and retreats for life enriching experiences to those fighting pediatric cancers.
Northeast Ohio Hospice promotes the hospice concept of caring and encourages and aids in the development of quality hospice programs for terminally ill patients and their families. We educate the public about hospice care and respond to the needs of the local community with hospice services that are consistent with the medical-moral teachings of the Roman Catholic Church
The Kabuki Syndrome Foundation (KSF) is the only US based 501c3 nonprofit organization dedicated to advocating for the advancement of Kabuki syndrome research. Since its inception in 2017, the Kabuki Syndrome Foundation has strived to promote activities that support, enable, and accelerate research efforts that will advance therapeutic treatments for those affected by Kabuki Syndrome (KS). Our mission is to drive research efforts that show promise to treat, prevent or cure Kabuki Syndrome through fundraising, knowledge-sharing and collaborating with researchers around the world.
To increase awareness and prevention of Sudden Cardiac Arrest (SCA) within families, communities, schools and Student-Athletes through education, healthcare screenings as well as donating automatic electronic defibrillators to schools that cannot afford them.
The Forsyth Community Clinic Mission is to harness the heart, expertise and resources of the community to deliver free basic health and wellness services to uninsured adult Forsyth County residents in need because it is vital that a community ensures its most vulnerable residents receive access to healthcare as a bridge to wellness and increased quality of life. It is our goal to lessen the gap in primary healthcare services for those without health insurance.
World Of Broken Hearts focuses on congenital heart defect and organ donation awareness by showcasing their journey through photographs and storytelling. Here at World of Broken Hearts, we give the gift of high-quality photographs and family portraits so the families can cherish for a lifetime.Our mission is to be able to raise much-needed CHD and organ donation awareness that can lead to much-needed CHD funding. We want to be able to travel all over children's hospitals in the U.S. and tell all these profound stories.
Our mission is to improve quality of life for people suffering from dry eye disease and ocular surface pain disorders.Our articles of incorporation describe our purpose as follows: "The purpose of the Corporation is to help alleviate the suffering of people with dry eye diseases by (i) educating patients and their loved ones about the diseases and their treatments, (ii) providing patients with information and tools to advocate for their needs effectively, (iii) educating the medical community about advances in dry eye assessment and care, (iv) raising public awareness of dry eye disease risk factors, and (v) encouraging and supporting scientific research that focuses on the priorities of dry eye disease patients."
Our mission at the Dion Children Foundation for Rare Disease is to increase awareness of rare and ultra-rare genetic diseases such as Limb-Girdle Muscular Dystrophy, that affect children with the intention of allocating funds for research and development of potential treatments and cures of these devastating diseases. Our belief at Dion Children Fund is that no child should be left behind. Our children matter, and so do the lives of so many other children affected by rare genetic neuromuscular diseases.
Empower, educate, and enhance the lives of individuals impacted by vision loss through all of life's transitions.
Learning Ally transforms the lives of new and struggling learners through literacy. By understanding how each student learns, Learning Ally will provide solutions to support and empower educators and students to solve the literacy problem.